The parents of a two-year-old girl with a life-limiting illness have told of their "exhaustion" after being refused a request for respite help.
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The couple are part of a group, Truth for Our Babies, who are campaigning for an independent investigation into maternity services at the University Hospitals Sussex NHS Trust. Earlier this month, BBC News and the New Statesman found that at least 55 babies over a five-year period might have survived with better care.
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